My Current Location Atlanta, GA 30308

Access Your Account

New to Healthgrades?

Join for free!

Or, sign in directly with Healthgrades:

Doctors and their Administrators:
Sign Up or Log In

Next Steps After Receiving a Misdiagnosis of IBS


Erin Azuse

Was this helpful? (4)
This content is selected and managed by the Healthgrades editorial staff and is brought to you by an advertising sponsor.

This content is created or selected by the Healthgrades editorial team and is funded by an advertising sponsor. The content is subject to the Healthgrades medical review process for accuracy, balance and objectivity. The content is not edited or otherwise influenced by the advertisers appearing on this page except with the possible suggestion of the broad topic area. For more information, read the HealthGrades advertising policy.

Doctor and patient conversation

If you have been diagnosed with irritable bowel syndrome (IBS) after experiencing chronic abdominal pain accompanied by constipation and/or diarrhea, you are not alone. IBS is believed to affect 10 to 20% of adults in the United States, with a majority being women, and is in the top 10 most commonly diagnosed conditions by U.S. doctors. However, there are many other conditions that can also produce very similar symptoms. So, what should you do if you worry you have been misdiagnosed—if you’re being treated for IBS but you don’t feel better? Here are some steps to undertake with your doctor to help find an answer.

1. Understand how IBS is diagnosed.

It is important to understand how your doctor arrived at an IBS diagnosis in the first place. There isn’t one specific test to definitively diagnose IBS. Instead, your doctor will look to see if your symptoms are consistent with IBS. Your doctor will see if you meet the following criteria:

  • Abdominal pain at least once a week for the last three months

  • Pain associated with bowel movements

  • A change in the frequency of stool

  • A change in the form or consistency of stool

  • Symptom onset at least 6 months ago

Other common symptoms include abdominal bloating, mucus in the stool, and the feeling of incomplete bowel movements.

Your doctor will also take a medical history and perform a physical exam. Additionally, you will be screened for the presence of “red flags”, signs that you could have a more serious condition instead, such as cancer or inflammatory bowel disease (IBD). If you do have any red flags, your doctor will order additional testing to rule out these other conditions before giving you a diagnosis of IBS. However, in the absence of any of these alarm signals, the American College of Gastroenterology recommends making a diagnosis based on signs and symptoms and avoiding extensive testing.

2. Recognize red flags.

In case of an IBS misdiagnosis, it is possible that a red flag was missed or that something has changed. For this reason, it’s helpful if you can recognize red flags and notify your doctor immediately. Things to watch for include:

  • Weight loss

  • Fever

  • Rectal bleeding

  • Nausea and vomiting

  • Anemia

  • Abdominal pain or diarrhea in the middle of the night

  • Progressively worsening symptoms

  • No response to current treatment

3. Track your symptoms.

When trying to get to the bottom of your true diagnosis, one of the best things you can do is keep a running log of your symptoms. Pay attention, of course, to your symptoms, but also consider:

  • When the symptoms occur

  • How often they occur

  • How long they last

  • What you were doing (or eating/drinking) prior to their onset

  • If the symptoms are new or changing

This provides a more complete picture for your doctor and may help guide decisions for future testing. And the small details matter! For example, abdominal bloating can be seen with both IBS and ovarian cancer. However, with IBS, bloating tends to come and go; yet with ovarian cancer the bloating may be more consistent and get worse over time.

4. Seek additional testing.

If it isn’t IBS, further diagnostic testing will be needed to determine what is causing your symptoms. Talk to your doctor about which tests may be appropriate for you:

Was this helpful? (4)
Medical Reviewers: William C. Lloyd III, MD, FACS Last Review Date: Apr 14, 2017

© 2016 Healthgrades Operating Company, Inc. All rights reserved. May not be reproduced or reprinted without permission from Healthgrades Operating Company, Inc. Use of this information is governed by the Healthgrades User Agreement.

View Sources

Medical References

  1. Diagnosis of IBS. International Foundation for Functional Gastrointestinal Disorders.
  2. Diagnosis of Irritable Bowel Syndrome. National Institute of Diabetes and Digestive and Kidney Diseases.
  3. IBS and IBD: Two Very Different Disorders. Crohn’s & Colitis Foundation.
  4. Irritable Bowel Syndrome. IBS.
  5. Irritable Bowel Syndrome- Tests and Diagnosis. Mayo Clinic.
  6. Signs and Symptoms of Colon Cancer. American Cancer Society.

You Might Also Like

When an IBS Diagnosis Doesn't Help With Diarrhea

Even through you’re following your doctor’s treatment plan for IBS, your diarrhea isn't getting any better. What's the matter?

Share via Email


When an IBS Diagnosis Doesn't Help With Diarrhea


8 Symptoms That Mean It's Not IBS

Up Next

8 Symptoms That Mean It's Not IBS