Next Steps After a Diagnosis of Hidradenitis Suppurativa
According to recent estimates, only 1% of the people in the United States have hidradenitis suppurativa (HS).Also known as acne inversa, HS is a rare skin condition that causes painful bumps on and under your skin, usually resembling pimples or boils. These bumps typically occur in places where your skin rubs together, and they can become infected if left untreated.
Following an HS diagnosis, you might have concerns about managing your skin condition, especially since HS tends to be something that reoccurs. Fortunately, there are several things you can do to help make controlling your HS easier. Talk to your doctor about which options might be best to manage your symptoms.
Since early treatment of HS can help promote healing of the areas of your skin affected by breakouts, it’s important to ask your doctor as soon as possible after your diagnosis about what treatment options might be best for you. If left untreated, it’s possible for HS to cause complications like infection, skin changes and scars, limited movement because of a buildup of scar tissue, and, in some cases, cancer.
The symptoms of HS breakouts are common among people diagnosed with the condition. If you have HS, your symptoms might include:
Pimple or boil-like breakouts that clear and then reappear.
Painful breakouts resembling pea-sized lumps under your skin.
Scars that form as a result of repeated breakouts.
Tunnels that form under your skin, connecting lumps to each other.
Foul-smelling fluid leaking from your breakouts.
Because there is no cure for HS, your doctor might suggest one or a combination of treatments, including medications or surgery. There are many options to help you take control of your HS, including:
Antibiotics and Pain Medications – you might find successful management of your symptoms can be achieved by taking certain medications. Your doctor might recommend antibiotics if your HS has caused an infection under your skin. It’s also common for doctors to suggest pain medications if your HS is uncomfortable.
Hormones – some studies suggest people with HS, especially women, might benefit from taking certain medications that help regulate hormone levels.
Anti-inflammatories – these can be given in oral or injectable form, and they can help reduce inflammation at the location of your flare-up.
Biologic targeted therapy – injectable drugs are FDA-approved for use in severe, refractory cases when previous efforts fail.
Surgery – occasionally, HS can cause tracks, known as tunnels, to form from bump to bump under your skin. This type of tunneling can be very painful, can become infected, and be very slow to heal. If your HS is severe, or if you have tunneling or wounds in certain areas of your body, your doctor might recommend surgery to clear the infection and allow your body to heal.
What You Can Do at Home
After you talk with your doctor, there are several things you can do at home to help manage your HS symptoms. It’s important to establish a daily skin-care routine that will help prevent your HS from getting worse or becoming more painful. You should avoid the use of washcloths, loofahs, or other bathing tools that can irritate your skin. Also, try to avoid any skin irritating products, like certain deodorants, cleansers that contain soaps, or shaving creams.
Your skin-care routine should include taking steps to prevent further injury to your skin. If you have HS, don’t squeeze any pimples or sores you might develop. If you shave, be sure to avoid areas that are affected by your HS.
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- Hidradenitis suppurativa: Overview. Mayo Clinic. http://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/home/ovc-20200012
- Hidradenitits suppurativa: Symptoms and causes. Mayo Clinic. http://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/symptoms-causes/dxc-20200019
- Hidradenitis suppurativa: Treatment. Mayo Clinic. http://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/diagnosis-treatment/treatment/txc-20200037
- Hidradenitits suppurative: Overview. American Academy of Dermatology. https://www.aad.org/public/diseases/painful-skin-joints/hidradenitis-suppurativa#overview
- Hidradenitis suppurativa: Signs and symptoms. American Academy of Dermatology. https://www.aad.org/public/diseases/painful-skin-joints/hidradenitis-suppurativa#symptoms
- Hidradenitis suppurativa: Diagnosis and Treatment. American Academy of Dermatology. https://www.aad.org/public/diseases/painful-skin-joints/hidradenitis-suppurativa#treatment
- Hidradenitis suppurativa: Self-management. Mayo Clinic. http://www.mayoclinic.org/diseases-conditions/hidradenitis-suppurativa/manage/ptc-20200056