7 Mistakes That People with MS Make
Medically Reviewed By William C. Lloyd III, MD, FACS
Written By Linda Wasmer Smith on July 16, 2021
No doubt about it: Multiple sclerosis (MS) is a challenging disease. But it’s a challenge you can manage by learning about MS and making smart lifestyle and treatment decisions. Read on to find out how well you’re doing already—and how to make even better choices in the future.
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Mistake 1: Not Opening Up to Your DoctorSome people hesitate to bring up sensitive issues—such as problems with sex, bladder control, forgetfulness, or depression—at doctor visits. Remember that other MS patients also have these concerns. Your doctor has successfully managed these same problems for them, and can suggest effective strategies to help you. But first, you have to share what’s on your mind.
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Mistake 2: Delaying Disease-Modifying DrugsDisease-modifying drugs (injections: Avonex, Betaseron, Copaxone, Extavia, Rebif, Ocrevus; oral: Aubagio, Gilenya, Tecfidera) may reduce MS flares and decrease worsening of the disease. Some people put off starting these powerful medications because they fear injections or worry about side effects and costs. Yet, the best clinical research has proven these drugs are most helpful early in the disease.
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Mistake 3: Ceasing Physical ActivityMS may sap your energy or limit certain physical activities, but it’s vitally important to keep moving. Regular physical activity improves your overall health, stamina, and mood. Plus, it helps manage MS symptoms such as fatigue, weakness, and tight muscles. Ask your doctor about the best exercise plan for you.
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Mistake 4: Letting Stress Get Out of ControlMS can be a difficult, unpredictable disease. You can’t always avoid stress. You can control how you respond to it. Proven stress-busters include yoga, meditation, exercise, positive thinking, and time with family and friends. Support groups and counseling may help, as well.
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Mistake 5: Refusing to Use a Mobility AidSome people with MS resist using a cane, walker, or scooter when needed, viewing it as a sign of disability. Using a mobility aid actually helps you maximize your abilities while preventing accidental injuries. It gets you where you want to go while saving energy, so you can be more active once you arrive.
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Mistake 6: Putting Off Home ModificationsDon’t wait until you’re struggling to adapt your home for MS. By modifying your home now, you can save energy, boost comfort, avoid falls, and stay more independent. Examples of helpful changes include good lighting, smooth nonskid flooring, grab bars, and easy-to-reach storage. Consult an occupational therapist for personalized suggestions.
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Mistake 7: Quitting MS TreatmentDisease-modifying drugs for MS are meant to be taken long-term. Some people quit taking them due to unrealistic expectations or unpleasant (but manageable) side effects. Yet sticking with treatment is the best way to slow the disease. If you have concerns, talk with your doctor, but don’t just stop your treatment.
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7 Mistakes People With MS Make